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Research on Genetic and Environmental Factors of Asthma and Associated Phenotypes

France, 1991 - 2013
Reference ID
FRESH-PEF5689-en
Producer(s)
Valérie;SIROUX
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Mar 11, 2026
Last modified
Mar 11, 2026
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  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Quality standards
  • Data Access
  • Contacts
  • Metadata production

    • Identification

    Survey ID number

    FRESH-PEF5689-en
    Title

    Research on Genetic and Environmental Factors of Asthma and Associated Phenotypes
    Abbreviation or Acronym

    EGEA
    Country
    Name Country code
    France fr
    Kind of Data

    ['Participant-reported health data','Biological data','Paraclinical data (non-biological) : Function testing']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Allergology health theme
    Pulmonary medicine health theme
    Unspecified asthma, uncomplicated cim-11
    Environmental determinants: Climate health determinant
    Biological determinants: Genetic predisposition health determinant
    Environmental determinants: Other health determinant
    Behavioral determinants health determinant
    Behavioral determinants: Eating habits health determinant
    Environmental determinants health determinant
    Healthcare system determinants: Use of care health determinant
    Socio-demographic and economic determinants: Employment health determinant
    Biological determinants health determinant
    Healthcare system determinants health determinant
    Socio-demographic and economic determinants health determinant
    Keywords
    genetic lung function improvement environment health events aggravation

    Coverage

    Universe

    {
    "level_sex_clusion_I": [
    {
    "value": "Male",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008297"
    }
    },
    {
    "value": "Female",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D005260"
    }
    }
    ],
    "level_age_clusion_I": [
    {
    "value": "Child (6 to 12 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D002648"
    }
    },
    {
    "value": "Young Adult (19 to 24 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D055815"
    }
    },
    {
    "value": "Adult (25 to 44 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000328"
    }
    },
    {
    "value": "Middle Aged (45 to 64 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008875"
    }
    },
    {
    "value": "Aged (65 to 79 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000368"
    }
    }
    ],
    "level_type_clusion_I": [
    "Patients population"
    ],
    "level_type_clusion_other": "",
    "clusion_I": "Asthmatic adults between 15 and 64 years of age and children (7-15 year old) born in France, and their parents. Selected family units with at least one blood relation (both parents, or one spouse and one child) in one of the five city \"centres\". Definition of disease characteristic criteria. - Case-controls: electoral registers, subjects monitored in surgery (adults + children) or in social security check-up clinics.",
    "clusion_E": ""
    }

    Producers and sponsors

    Primary investigators
    Name
    Valérie;SIROUX
    Producers
    Name Role
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) sponsor
    Other Identifications/Acknowledgments
    Name
    Involved in cohort network: GABRIEL, ESCAPE

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.) Medical-administrative database (patients, health insurance/mutual insurance) Disease and death registry']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    1991-01-01 2013-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"SelfAdministeredQuestionnaire","vocab":"CESSDA"},"value":"Self-administered questionnaire"}
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Quality of life/health perception

    Quality standards

    Other quality statement

    ['Consistency request after electronic data is recorded. Internal quality audit and external quality audit carried out each year.']

    Data Access

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
    Restrictions

    Data may be used by academic teams. Data may be used by industrial teams.

    Contacts

    Contacts
    Name Email
    Valérie;SIROUX valerie.siroux@univ-grenoble-alpes.fr

    Metadata production

    DDI Document ID

    FRESH-PEF5689-en
    Producers
    Name Affiliation
    Valérie SIROUX UNIVERSITE GRENOBLE ALPES
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