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Longitudinal Study on Chronic Disease Caregivers: New Forms of Optimised Support for Quality of Life, Cost and Wellness

France, 2015 - 2021
Reference ID
FRESH-PEF22906-en
Producer(s)
Astrid;POZET
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Aug 31, 2026
Last modified
Sep 18, 2026
Page views
6
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts
  • Metadata production

    • Identification

    Survey ID number

    FRESH-PEF22906-en
    Title

    Longitudinal Study on Chronic Disease Caregivers: New Forms of Optimised Support for Quality of Life, Cost and Wellness
    Abbreviation or Acronym

    ICE : Informal Carers of the Elderly
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Economic data','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Oncology health theme
    Cardiology and vascular medicine health theme
    Geriatrics health theme
    Neurology health theme
    Ophthalmology health theme
    Andrology and urology health theme
    Nephrology health theme
    Stroke not known if ischaemic or haemorrhagic cim-11
    Heart failure cim-11
    Parkinsonism cim-11
    Dementia due to Lewy body disease cim-11
    Alzheimer disease cim-11
    Dementia due to cerebrovascular disease cim-11
    Frontotemporal dementia cim-11
    Malignant neoplasms of breast cim-11
    Malignant neoplasms of prostate cim-11
    Malignant neoplasms of colon cim-11
    Malignant neoplasms of rectum cim-11
    Age-related macular degeneration cim-11
    Behavioral determinants health determinant
    Other health determinant
    Keywords
    caregivers life trajectory Health Quality of life olders chronic diseases social support

    Coverage

    Geographic Coverage

    ['Bourgogne Franche-Comté']
    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}},{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}},{"value":"Aged (65 to 79 years)","concept":{"vocab":"MeSH","vocabURI":"D000368"}},{"value":"Aged, 80 and over (80 years and more)","concept":{"vocab":"MeSH","vocabURI":"D000369"}}],"level_type_clusion_I":"General population","level_type_clusion_other":"","clusion_I":"male and female - adult - informal caregivers assisting a relative that is at least 60 years old with a recently diagnosed chronic condition - residing in Burgundy or Franche-Comté","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Astrid;POZET
    Producers
    Name Role
    CHU BESANCON (CHU) sponsor
    Funding Agency/Sponsor
    Name
    AGENCE NATIONALE DE LA RECHERCHE (ANR)
    CAISSE NATIONALE DE SOLIDARITE POUR L'AUTONOMIE (CNSA)
    F. HOFFMANN-LA ROCHE AG
    INSTITUT NATIONAL DU CANCER (INCA)
    LIGUE NATIONALE CONTRE LE CANCER (LNCC)
    Other Identifications/Acknowledgments
    Name
    Besançon hospital - Dijon hospital-Centre Georges François Leclerc-Pôle de Gérontologie et d'innovation-University of Burgundy-Franche-Comté

    Study authorization

    Agency
    Agency name
    CNIL
    CPP
    CESREES

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)','Through independent healthcare practitioners']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2015-01-01 2021-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"SelfAdministeredQuestionnaire","vocab":"CESSDA"},"value":"Self-administered questionnaire"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health care consumption and services Quality of life/health perception Others

    Data Access

    Access conditions

    Contact the principal investigator
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name
    Virginie;NERICH
    Astrid;POZET

    Metadata production

    DDI Document ID

    FRESH-PEF22906-en
    Producers
    Name
    Tohmas Martin
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