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Study of outcome trajectories and risk factors in a cohort of children and adolescents with Autism Spectrum Disorders (ASD)

France, 2012 - 3000
Reference ID
FRESH-PEF5021-en
Producer(s)
Amaria;BAGHDADLI
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Sep 10, 2026
Last modified
Sep 17, 2026
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  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts
  • Metadata production

    • Identification

    Survey ID number

    FRESH-PEF5021-en
    Title

    Study of outcome trajectories and risk factors in a cohort of children and adolescents with Autism Spectrum Disorders (ASD)
    Abbreviation or Acronym

    ELENA-E0
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Neurology health theme
    Paediatrics health theme
    Psychiatry health theme
    Neurodevelopmental disorders cim-11
    Socio-demographic and economic determinants health determinant
    Biological determinants health determinant
    Biological determinants: Genetic predisposition health determinant
    Keywords
    trajectories of change clinical epidemiology childhood adolescence autism spectrum disorders cohort

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Child, Preschool (2 to 5 years)","concept":{"vocab":"MeSH","vocabURI":"D002675"}},{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Children and adolescents under age 20, with a diagnosis of ASD formally established by a multidisciplinary team according to international criteria. Parents must have given their oral consent.","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Amaria;BAGHDADLI
    Producers
    Name Role
    CENTRE HOSPITALIER UNIVERSITAIRE DE MONTPELLIER (CHU) sponsor
    Funding Agency/Sponsor
    Name
    CAISSE NATIONALE DE SOLIDARITE POUR L'AUTONOMIE (CNSA)
    CENTRE HOSPITALIER UNIVERSITAIRE DE MONTPELLIER (CHU)
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2012-01-01 3000-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality Health care consumption and services Quality of life/health perception

    Data Access

    Access conditions

    access to the data base is subject to the approval of the scientific leader and the sponsor of the study
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Amaria;BAGHDADLI dir2@impact-dev.tn

    Metadata production

    DDI Document ID

    FRESH-PEF5021-en
    Producers
    Name Affiliation
    Amaria BAGHDADLI CENTRE HOSPITALIER UNIVERSITAIRE DE MONTPELLIER (CHU)
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