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National register of des pediatric hematological malignancies

France, 1990 - 3000
Reference ID
FRESH-PEF61-en
Producer(s)
Jacqueline;CLAVEL
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Sep 10, 2026
Last modified
Sep 17, 2026
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  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts
  • Metadata production

    • Identification

    Survey ID number

    FRESH-PEF61-en
    Title

    National register of des pediatric hematological malignancies
    Abbreviation or Acronym

    RNHE
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Biological data','Socio-demographic data','Paraclinical data (non-biological) : Imaging']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Oncology health theme
    Hematology health theme
    Paediatrics health theme
    Neoplasms cim-11
    Behavioral determinants health determinant
    Environmental determinants health determinant
    Healthcare system determinants: Access to care health determinant
    Biological determinants health determinant
    Biological determinants: Genetic predisposition health determinant
    Environmental determinants: Other health determinant
    Keywords
    incidence rates types of leukemia and lymphoma particular exposure HIV mother perinatal period environmental exposures survival general population risk

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Infant, Newborn (birth to 28 days)","concept":{"vocab":"MeSH","vocabURI":"D007231"}},{"value":"Infant (28 days to 2 years)","concept":{"vocab":"MeSH","vocabURI":"D007223"}},{"value":"Child, Preschool (2 to 5 years)","concept":{"vocab":"MeSH","vocabURI":"D002675"}},{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Population less than 18 years of age suffering from primitive or secondary hematological or borderline malignancy (leukemia, lymphoma, myelodysplastic syndrome, myeloproliferative disease, Langerhans cell histiocytosis).","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Jacqueline;CLAVEL
    Producers
    Name Role
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) sponsor
    Funding Agency/Sponsor
    Name
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM)
    INSTITUT NATIONAL DU CANCER (INCA)
    SANTE PUBLIQUE FRANCE

    Sampling

    Sample frame

    Unit Type

    ['']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    1990-01-01 3000-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"MeasurementsAndTests.Physical","vocab":"CESSDA"},"value":"Physical/biological measurements (blood pressure, weight, biochemistry, imaging, etc.)"}
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality Health care consumption and services

    Data Access

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Jacqueline;CLAVEL dir5@impact-dev.tn

    Metadata production

    DDI Document ID

    FRESH-PEF61-en
    Producers
    Name Affiliation
    Jacqueline CLAVEL INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM)
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