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Idiopathic Interstitial Pneumonia: From Infancy to Elderly

France, 2017 - 2021
Reference ID
FRESH-PEF73380-en
Producer(s)
Contri;BUTEUR
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Sep 11, 2026
Last modified
Sep 17, 2026
Page views
52
  • Study Description
  • Get Microdata
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Quality standards
  • Data Access
  • Contacts
  • Metadata production
  • Identification

    Survey ID number

    FRESH-PEF73380-en

    Title

    Idiopathic Interstitial Pneumonia: From Infancy to Elderly

    Abbreviation or Acronym

    RaDiCo-PID

    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Participant-reported health data','Biological data']

    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Paediatrics health theme
    Pulmonary medicine health theme
    Respiratory diseases principally affecting the lung interstitium cim-11
    Environmental determinants: Climate health determinant
    Socio-demographic and economic determinants health determinant
    Behavioral determinants health determinant
    Environmental determinants health determinant
    Healthcare system determinants: Use of care health determinant
    Healthcare system determinants: Access to care health determinant
    Socio-demographic and economic determinants: Employment health determinant
    Biological determinants health determinant
    Healthcare system determinants health determinant
    Biological determinants: Genetic predisposition health determinant

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Infant, Newborn (birth to 28 days)","concept":{"vocab":"MeSH","vocabURI":"D007231"}},{"value":"Infant (28 days to 2 years)","concept":{"vocab":"MeSH","vocabURI":"D007223"}},{"value":"Child, Preschool (2 to 5 years)","concept":{"vocab":"MeSH","vocabURI":"D002675"}},{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}},{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}},{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}},{"value":"Aged (65 to 79 years)","concept":{"vocab":"MeSH","vocabURI":"D000368"}},{"value":"Aged, 80 and over (80 years and more)","concept":{"vocab":"MeSH","vocabURI":"D000369"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Patient with a diagnosis of IIP/PID IIP/PID diagnosis is established on presenting history, clinical, radiological and functional and if available pathological findings. Inclusion criteria include: Clinical criteria: chronic respiratory insufficiency manifestations including dyspnea/tachypnea, cough, and cyanosis during exercise or at rest Radiological criteria: characteristic chest High-Resolution Computed Tomography (HRCT) abnormalities including widespread ground glass or alveolar attenuation, reticulation often associated with traction bronchiectasis, and honeycombing Functional criteria: pulmonary function test abnormalities reflecting a restrictive pattern and including: loss of lung volume, vital capacity (VC), total lung capacity (TLC); reduction in the diffusion capacity of the lung for carbon monoxide (DLCO), gas exchange abnormalities, and altered ventilatory response to exercise Patients (parents/guardians for paediatric/patients) having given an informed consent to participate in the protocol Patients affiliated to the “Regime National d’Assurance Maladie” ","clusion_E":"Patients with diffuse parenchymal lung diseasescaused by drug toxicity, immunodeficiency, proliferative disorders including histiocytosis, and metabolic disordersPatients (parents/guardians for paediatric patient) not able to approve/understand the protocol "}

    Producers and sponsors

    Primary investigators
    Name
    Contri;BUTEUR
    Producers
    Name Role
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) sponsor
    Funding Agency/Sponsor
    Name
    AGENCE NATIONALE DE LA RECHERCHE (ANR)
    Other Identifications/Acknowledgments
    Name
    Rare Pulmonary Diseases Healthcare Network RespiFil / European Reference Network ERN-LUNG

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']

    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only

    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2017-01-01 2021-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}

    Study activities

    Study activities
    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality Health care consumption and services Quality of life/health perception Others

    Quality standards

    Quality standards
    Standard
    ['HPO, ICD10, Snomed CT, Orpha Codes and ORDO, Drug dictionary (DCIs)']
    Other quality statement

    ['Continuous data management; Data Management Plan and Data Validation Plan. Native controls and Query system']

    Data Access

    Access conditions

    Access requests to RaDiCo-PID data (rough / structured), biocollections or to analytic reports will be examined by the scientific committee following submission of a Specific Research Project (SRP) synopsis, as defined in the Resource Access Charter. Must be sent to pid@radico.fr

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Contri;BUTEUR dir5@impact-dev.tn

    Metadata production

    DDI Document ID

    FRESH-PEF73380-en

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